TWINS RUN in our family

Thursday, June 20, 2013

Digestive Health Alliance Advocacy Day

On June 19, I joined Advocates from the Digestive Health Alliance (DHA) and International Foundation for Functional Gastrointestinal Disorders (IFFGD) on Capitol Hill. We met with congressional and senatorial staff to ask for their support of the Functional Gastrointestinal & Motility Disorders Research Enhancement Act of 2013 (H.R. 842).

You can also help by emailing your member of the U.S. House of Representatives in support of the Functional Gastrointestinal & Motility Disorders Research Enhancement Act of 2013 (H.R. 842). When you reach out as a constituent, you put a face on those affected by functional GI and motility disorders; you add meaning to what could be just another piece of legislation coming across a desk.

Thank you for your support!

Patient & Family Advocates from Pennsylvania

Crystal Saltrelli, author of Living (Well) with Gastroparesis

Digestive Health Alliance (DHA)
www.dha.org

International Foundation for Functional Gastrointestinal Disorders (IFFGD)
www.iffgd.org

National Digestive Diseases Information Clearinghouse (NDDIC)
http://digestive.niddk.nih.gov/ddiseases/pubs/gastroparesis/index.aspx

Living with Gastroparesis
www.livingwithgastroparesis.com

Cheryl Aaron Memorial Fund
www.cherylsfund.com

My Crazy Colon
www.mycrazycolon.com

Monday, June 17, 2013

Running Thoughts...

Thursday, June 13, 2013

Running with Grief: Identical Twins Run Together to Remember

It's been almost one year since our grandma "GG" died suddenly from cancer on July 16, 2012. I'm grateful that I continued to run through my grief. I'm also grateful I could run with Team Lemon to support Alex's Lemonade Stand Foundation.

I'm in the process of writing a post on the subject of running through grief. If running has helped you cope with grief and you are willing to share your story, please comment below. All comments must be approved before they are published, so if you'd prefer to keep your comment private, just let me know and it won't be published.

Grief is not the process of forgetting.
Grief is the process of remembering,
with less pain and more joy.

One step at a time...

www.alexslemonade.org/mypage/93394
www.facebook.com/twinsruninourfamily
www.twitter.com/twinsrun
www.instagram.com/twinsrun

Monday, June 10, 2013

Alex's Original Lemonade Stand

Alex's "Original" Lemonade Stand was held on Saturday, June 8 at Penn Wynne Elementary School. Over $116, 000 was raised to fight childhood cancer. Thanks to all who made contributions to make a difference for children with cancer. And, thank you Alex for inspiring so many!

I was so grateful to be there to participate in the Butterfly Release. I released my butterfly in memory of Alex and all children who have died too soon.

A butterfly lights beside us like a sunbeam

And for a brief moment

Its glory and beauty belong to our world

But then it flies again

And though we wish it could have stayed

We feel lucky to have seen it

Friday, May 31, 2013

Twins Run with Team Lemon

Leah & Malinda are identical twins but opposite runners. Malinda is the "go with the flow" slower 1/2 who prefers to tweet, instagram & run marathons (4:00:57). Leah is the BQ (3:35:36) x 2 "Garmin obsessed" faster 1/2 who prefers to run as many races as possible. :-)

Michael, Leah's brother-in-law, was diagnosed with leukemia as a child. Michael kept fighting cancer with his inspiring Irish spirit, so it was very bittersweet when he died on St. Patrick's Day, 2003.

The twins' grandmother, affectionately know as GG, was diagnosed with cancer on Friday, July 13, 2012 and died on Monday, July 16, 2012.

In memory of Michael & GG, TWINS RUN together with Team Lemon to fight childhood cancer! Follow @TwinsRun as we prepare to run our 2nd Chicago Marathon together on October 13, 2013.

No donation is too small to fight childhood cancer. Can you donate $2?

Or, join our "Mother Runners & Others" Team and help Alex's Lemonade Stand Foundation reach 1 million miles this September!

www.alexslemonade.org/mypage/93394

www.facebook.com/twinsruninourfamily

www.twitter.com/twinsrun

www.instagram.com/twinsrun

http://www.alexslemonade.org/campaign/million-mile-run

https://www.facebook.com/alexslemonade

Tuesday, May 28, 2013

#RWRunStreak

Run a mile a day, every day

Memorial Day to Independence Day

Thanks Runner's World & @PavementRunner!

I'm inspired to run at least 1 mile each day!

Day 1: @MalindaAnnHill's 1st @VineApp

My mileage so far...

7.5 miles on Memorial Day

3.85 miles on May 28

Saturday, May 25, 2013

Panda Prepares for #RWRunStreak

Panda: "Wow, you do this every day?"

Slower 1/2 of @TwinsRun: "Yep!"

Join Runner's World Summer Run Streak
(#RWrunstreak)
Run at least 1 mile a day,
Memorial Day to Independence Day

(May 27 - July 4)

#RWRunStreak Image via Pavement Runner

We're in!
:-)

Thursday, May 23, 2013

The Afghan Whigs & Our Congregation to Conquer Cancer

Greg Dulli at The Bowery Ballroom - May 23, 2012

It has been one year since I first met two inspiring mother runners fighting cancer. Thanks to our love for The Afghan Whigs and running, our friendship has grown and our Congregation to Conquer Cancer continues. We ran the Nike Women's Half Marathon DC together and we're all training for marathons while raising money to fight cancer. This year, Anne will run the New York City Marathon with DetermiNation to support the American Cancer Society. Malinda will run the Chicago Marathon with Team Lemon to support Alex's Lemonade Stand Foundation for Childhood Cancer.

New Year's Eve

Nike Women Half Marathon DC

Shalane & Joan

Monday, May 6, 2013

2013 Blue Cross Broad Street Run Ten Miler: Red Socks Running

From Philly to Boston with Love

Before the runners arrive

Since I PR'd at 2012 Broad Street Run (1:29), I decided that I didn't want to run this year. After my 10 mile run on Saturday, I was ready to cheer runners on Sunday! Almost 3 weeks after the Boston Marathon, it was inspiring to see red socks running!

I was very grateful for the opportunity to spectate. In case you missed it, "Standing Ovation" by Mark Remy was a powerful tribute to spectators. Mark was able to capture all of my emotions related to the Boston Marathon tragedy.

And, thanks to Team Philly and Philadelphia Runner for a great tailgate!