Showing posts with label Gastroparesis. Show all posts
Showing posts with label Gastroparesis. Show all posts

Monday, May 5, 2014

Why I Run Broad Street: Solace, Community and Sisterly Competition


Why I Run Broad Street: Solace, Community and Sisterly Competition
Originally Posted on WHYY Newsworks

Over the past two years, my identical twin, Leah, and I have shared our experiences on our blog, "Twins Run in Our Family," Twitter, Instagram and Facebook. Much to our surprise, we've gained quite a following of runners, twins and/or parents of twins. We're often recognized at races when we wear our shirt that has our logo on the front and our tagline on the back: "If you're passing me, I'm Malinda. If I'm passing you, I'm Leah."

I started running in 1993 for fun, and I finished my first marathon in 1995. Since then, I have completed 12 more marathons and a few dozen races, including three Broad Street Runs. Over the past couple of years, I've become known for tweeting during races while wearing a sparkle skirt or costume. Sometimes I get called out by spectators for tweeting while running, but most of the time people are amazed that I can do both at the same time.

Leah started running in 2007 to lose weight. Since then, she has become a self-professed race addict, finishing more than 100 races, including 24 marathons. She races nearly every weekend and often wins her age group in local races in Charlottesville, Virginia. She has qualified for the Boston Marathon three times by completing a marathon in less than 3 hours and 45 minutes. She finished her first Boston Marathon last year and returned for her second time this year.

In 2010, I was diagnosed with gastroparesis, a condition that causes severe stomach pain, nausea and vomiting. There is no cure for gastroparesis and only a few treatments available with varying success rates. In 2011, I had a gastric neurostimulator (stomach pacemaker) implanted, which has provided some relief. My symptoms can be debilitating at times, but I continue to run whenever possible.

In 2012, our grandmother, affectionately known as "GG," died suddenly of lung cancer. Her unexpected death affected me profoundly. While the grief was intense, I found moments of solace while running.

Because of my experience with chronic illness and grief, I'm truly grateful for every step, and I'm determined to make my miles matter. I'd rather run in a charity race to raise awareness for a worthy cause than run a fast time. Sometimes, much to my surprise, I'm able to do both.

On March 17, 2012, 9 years to the day after Leah's brother-in-law, Michael, died from childhood leukemia, we decided to run together to make a difference. We joined Team Lemon to support Alex's Lemonade Stand Foundation for Childhood Cancer in memory of GG and Michael. Over the past two years we have raised awareness and over $2,000 for childhood cancer research.

I ran the Broad Street Run for the first time in 1999 when there were just over 7,000 runners. I ran for the second time in 2012 with over 35,000 runners, and I was happy to finish in 1:29:02.

It's been amazing to see running increase in popularity while people in the running community continue to be supportive of each other. Whether you run fast or slow, we all run together.


Last year, after being present during the tragedy at the Boston Marathon, I decided it was important for me to cheer on my fellow runners on Broad Street. My eyes were full of tears as I saw so many runners wearing red socks in support of Boston.


Yesterday, I was grateful for the opportunity to run Broad Street once again. It's an honor to participate in a race that means so much to so many people while benefiting so many worthy causes. Not only was I able to run to support Alex's Lemonade, I also ran my fastest 10 miler and finished in 1:16:23. Sometimes, it is possible to run for a good cause and a good time.

http://www.newsworks.org/index.php/essay-works/item/67635-why-i-run-broad-street-solace-community-and-sisterly-competition


Why did you run Broad Street? Did you write a race recap? Share your link in the comments section and I'll add your link to the list below.

Adam Furlong's Photos - BSR Cheering

BK's Blog - Broad Street Run Recap

Cocktails and Quinoa - IBXrun10 and My Running Journey

Do It for Youself - 2014 Blue Cross Broad Street Run Race

Jessica Lawor - A Philadelphia Love Story: Broad Street Run Race Recap

Knead to Cook - Philadelphia - The Broad Street Ten Miler

The Midpack Podcast.com - Bandits, Broad Street and The Batman

Miss Adventures Running - Broad Street Run

Monster and Me - Broad Street Run Recap

Navel Gazing - Let the Slower Runners Run Repost

On the In Side - 2014 Broad Street Run Race Recap Part 1

Philadelphia Inquirer - Let the slower runners run by Jen A. Miller

Philly Mag - 10 Lessons from First Broad Street Run Newbie

Philly Mag - 10 Hilarious Signs from Broad Street Run

Philly Mag - Broad Street Run Guide

Philly Nerd Girl - Broad Street Run 2014

The R5 - Running Workout Recap April 28th - May 4th

Rob C Nagel - Success at the Broad Street Run

Runderella - Broad Street Run 2014 - My Favorite Race

RUNFM - Race Recap Broad Street 10 Miler

Running Around My Kitchen - Broad Street Run Recap

Running for the Average Joe - Broad Street Run Recap

Runaway Wonk - Race Review: Broad Street 10-Miler

Sisters Running The Kitchen - 2014 Race Recap

Tania Gail - Broad Street 10 Miler

Tomato Face Runs Again - Broad Street Run 2014 Recap Part 1

Tomato Face Runs Again - Broad Street Run 2014 Recap Part 2

The Triangle Independent Student Newspaper at Drexel University - In Reverence to the Runners

Ups and Downes.com - Ugly Races - Broad Street Run

Women's Running - Girl Talk: Facing Disappointment


ICYMI - 2013 Recaps

And Her Little Dog Too - Broad Street Run 10-miler Race Recap - 2013

The bFIT Studio - Broad Street Run 10 Miler Recap

Victoria Friele - Broad Street Run in Philly






Thursday, June 20, 2013

Digestive Health Alliance Advocacy Day

On June 19, I joined Advocates from the Digestive Health Alliance (DHA) and International Foundation for Functional Gastrointestinal Disorders (IFFGD) on Capitol Hill. We met with congressional and senatorial staff to ask for their support of the Functional Gastrointestinal & Motility Disorders Research Enhancement Act of 2013 (H.R. 842)

You can also help by emailing your member of the U.S. House of Representatives in support of the Functional Gastrointestinal & Motility Disorders Research Enhancement Act of 2013 (H.R. 842). When you reach out as a constituent, you put a face on those affected by functional GI and motility disorders; you add meaning to what could be just another piece of legislation coming across a desk. 

Thank you for your support!

Patient & Family Advocates from Pennsylvania

Crystal Saltrelli, author of Living (Well) with Gastroparesis

Digestive Health Alliance (DHA)
www.dha.org

International Foundation for Functional Gastrointestinal Disorders (IFFGD)
www.iffgd.org

National Digestive Diseases Information Clearinghouse (NDDIC)
http://digestive.niddk.nih.gov/ddiseases/pubs/gastroparesis/index.aspx

Living with Gastroparesis
www.livingwithgastroparesis.com

Cheryl Aaron Memorial Fund
www.cherylsfund.com

My Crazy Colon
www.mycrazycolon.com


Monday, January 7, 2013

My 3G Network: Grief, Gastroparesis & Goofy Challenge

Today, January 7, is GG's birthday. On January 13, when @TwinsRun the 2nd half of Goofy's Race and a Half Challenge, it will be 6 months since I received the phone call. On Friday, July 13, our mom called to tell me that our grandma, GG, had fallen and was very ill. GG was diagnosed with cancer and died on Monday, July 16. The grief over the past 6 months has been intense. My only solace has been running (#Irun4GG). I'm grateful that Leah and I will run Goofy's Race and a Half Challenge together to support Alex's Lemonade Stand Foundation for Childhood Cancer in her memory. She was so proud of us for supporting such a worthy cause.

I grieve for myself, my family and especially for my mom. I wish I could give more support to my mom, because she lost her mom and best friend. I can only imagine how difficult it has been for her since I can't imagine my life without my mom.

It's been especially difficult for me lately, since I still struggle with gastroparesis. Sometimes, the physical pain is easier to cope with than the emotional pain. Even with the pain, I'm grateful for the support I received from GG and the support I continue to receive from my mom. Because of their support, it's important for me to keep going and to keep giving back to others.

Thursday, October 18, 2012

Running with Gratitude Grief, & Gastroparesis (#Irun4GG)

It's been a difficult 3 months..
The pain of grief & gastroparesis can be intense...



In spite of the pain, I keep on running...


I finished the Chicago Marathon in 4:05:58





Michael & GG were with me...

Every step of the way...



I find solace in running...

I'm grateful for every mile...

Training for my 3rd Philly Marathon...



Identical twins run with Team Lemon

In memory of our grandma "GG"

and Leah's brother-in-law Michael.



Can you donate $2 to Alex's Lemonade?

Are you training for the Philadelphia Marathon?

Are you a runner with chronic illness?

Do you find solace in running?

Malinda's posts on Grief, Gratitude & Gastroparesis:
Grief & Gratitude
Sep 24, 2012

Grief & Gratitude. On Friday, July 13, our grandma "GG" fell. In the ER, she was diagnosed with cancer. She died 3 days later on Monday, July 16. It's been 10 weeks since GG died. We are still crying and missing you.

Tweeting While Running: #TweetAndRun
Sep 13, 2012

I've been using the hashtags #Irun4GG (I run in memory of my grandma GG), #GGplaylist (Random Shuffle + Grief + Gratitude) and #TweetAndRun. After honing my skills at cutting, pasting, cropping and typing while running, ...

Philly Undy 5000 Race Recap
Sep 08, 2012

Since Katie lost her husband to colon cancer, I was so grateful for her support of my tweet to bring awareness to the Undy 5000 and grieving families! I'm still trying to gather my thoughts to write a post, but wanted to share a ...

Twin Powers Activate on @TwinsRun ...
Aug 28, 2012

TWIN POWERS ACTIVATE! Can you donate $2 on @TwinsRun 2sDay? http://www.alexslemonade.org/mypage/81058 · THANKS for your support! Malinda Runs 2 #GGPlaylist! Random Shuffle = Grief & Gratitude Love to get ...

Gastroparesis & Grief
Aug 19, 2012

Gastroparesis & Grief. It's been a difficult 5 weeks... The pain of grief and gastroparesis has been intense... Each day can be a struggle, but I keep on running... I find solace in running and I'm grateful for every mile... In 7 weeks ...

@TwinsRun 2gether
Jul 29, 2012

The twins' Irish grandmother was diagnosed with cancer on Friday, July 13 and died on Monday, July 16, 2012. Her sudden and unexpected death has affected the twins profoundly. Their grief is intense, ...

The Afghan Whigs
Jul 28, 2012

We are still grieving her loss, but we keep running in her honor and in her memory with Team Lemon to support Alex's Lemonade Stand Foundation for Childhood Cancer. Our grandma GG always had great sense of humor ...

#GGplaylist (Grandma's Songs & Signs)
Jul 27, 2012

#GGplaylist = random shuffle + grief + gratitude. Posted by TWINS RUN in our family at 1:21 PM · Email ThisBlogThis!Share to TwitterShare to Facebook. Labels: #GGplaylist, Afghan Whigs, grandma, Gratitude, Grief, ...

Random Shuffle + Grief + Graditude = #GGplaylist
Jul 25, 2012

Random Shuffle + Grief + Graditude = #GGPlaylist (July 24). Random Shuffle on iPhone = #GGplaylist. Grief + Gratitude <--> Great + Grandma. Follow #GGplaylist on Twitter & Instagram!


Blue Monday & #GGPlaylist
Jul 23, 2012

We are still grieving her loss, but we keep running in her honor and in her memory. She always had great sense of humor & her spirit is still with me on my #run! #randomplay shuffle songs = #ggplaylist! #irun4gg #runchat # ...


Random Shuffle + Grief + Graditude ...
Jul 23, 2012

Random Shuffle + Grief + Graditude = #GGPlaylist (July 23) ... Share to TwitterShare to Facebook. Labels: #GGplaylist, Afghan Whigs, Chicago Marathon, GG, grandma, Gratitude, Grief, instagram, Malinda, Marathon Training ...


I Will Say Your Names & Remember
Jul 20, 2012

They hold onto the grief that binds their love to you. They will remember the insidious unknowns. That stole your breath, stopped your beating hearts. They will relive your last moments, last touches, last breaths. And rewind ...

"GG" . . . Our Grief & Gratitude
Jul 19, 2012

“I know for certain that we never lose the people we love, even to death. They continue to participate in every act, thought and decision we make. Their love leaves an indelible imprint in our memories. We find comfort in ...


In Loving Memory of "GG"
Jul 17, 2012

We will continue to fight to end cancer in their memory. We will advocate for palliative care & hospice, too. We thank you for your support during this difficult time. "Grief is not the process of forgetting. Grief is the process of ...

Wednesday, September 19, 2012

Rock N Roll Philadelphia Half Marathon Race Retweet

Currently working on my race RT. Did you run, cheer or follow on Sunday? In the meantime, in case you couldn't follow, below are some of my tweets & instagrams!


September 15, 2012 
By Marc Narducci, Inquirer Staff Writer

"There are many reasons more than 21,000 participants are competing in Sunday's Rock 'n' Roll Philadelphia Half Marathon. ... For Malinda Ann Hill of Wynnewood, it's a way to raise money for a worthy cause.

For the 41-year-old Hill, competing in this race is one great tweet. She runs marathons and half-marathons and also tweets during the race. So one can check the progress during the race - @twinsrun.

The bereavement coordinator of Children's Hospital of Philadelphia, Hill is accepting donations on behalf of Alex's Lemonade Stand, the foundation that raises money and awareness for childhood cancer.

She and her twin sister, Leah Connor, often run together, but in this event she will be going solo. The twins raise money for charity and also run in memory of Leah's brother-in-law, Michael Connor, who died of leukemia in 2003, and their grandmother Aileen Hill, who died in July of cancer. They will be participating in next month's Chicago marathon. In addition to the tweets, Hill also blogs about her exploits at www.twinsruninourfamily.com.

So along with her running gear, Hill will have her iPhone. And of course she will be accepting donations."